9/4/12

It’s been a long time between posts, it has been a busy and enjoyable summer we had been planning our daughter’s wedding. She was married on 8/17 and her father walked her down the aisle…he couldn’t have been more proud! We had some concerns as he had been falling a lot more of late and his legs and knees are very achy these days.

He is progressing both physically and mentally and it seem like more people are noticing. It has been a full six years close to seven and I am starting to worry more that he will have a more pronounced progression….although I do not know that this will happen I just seem to be waiting for that shoe to drop. That sounds pessimistic I’m sure and I hope it doesn’t happen but from all I have researched it seems inevitable.

Bernie just told me how much he would like to go to Gettysburg PA to see the battlefield and all the historic places in that area so I am taking him in a few weeks. I am hoping that he will be able to do all there is to do and figure I better get him there before he won’t be able to enjoy it. I have been thinking about getting a wheelchair to help him get around but he is not to keen on the idea. I do understand why he feels that way but he gets so short of breath these days and it doesn’t take much activity to make him tired. Whatever happens though I am glad to have the opportunity to take him on this trip and hope I can continue to go places with him in the future.

Progression noticed in the following areas;

Motor function – holding objects – glasses, spoons, forks etc.

Walking – freezing more

Speech – much worse – very soft voice – slurring words

Skin – seems to have some issues with sores – getting looked at next week

Sleep – seem to have insomnia….. not sure why

Be thankful for the small things in life.