Where are we now……… This disease is so frustrating……. So unpredictable…… I guess that sums up life in general too, you never know what tomorrow will bring so you can only live today for all that it is worth! I wish the progression of this illness was more predictable, it is difficult to make long term plans and for that matter short term plans. If I knew where Bernie would be next year at this time it might help me to make more informed decisions to our life’s plan. He is definitely have a harder time seeing and reading, a harder time walking and talking, eating is still pretty good for now except for the fact that he overstuffs his mouth ALL THE TIME!. It’s so darn frustrating. We are going on a vacation in 3 weeks with the children and I will be curious to see how he does at the beach walking in the sand. I am thinking it won’t be easy with the sand moving under his feet, he tires so easily too. Although I would like to update his progression it is so hard to do because it is the same issues only worse. I guess as long as nothing major is happening we’re doing okay.