9/19/11
Still more falls, and this particular weekend was especially bad, Bernie’s balance was way off. He fell Friday night down 2 stairs and has quite the contusion on his thigh, and again hit an elbow. He did not have the pads on because it was the middle of the night and he does not sleep with them. Our bathroom (on the main floor) should be done in a week to 10 days, and then he won’t have to go down stairs to use the facilities. I will also be moving the TV from the basement upstairs also, so he will have no reason to go down to the family room in the basement, we are at that point where we have to make major changes to keep him safe. The TV in the basement has a home theater system hooked up to it so he likes to watch things downstairs but the stairs are unsafe so he will have to make some adjustments too. He is generally slowing down in all areas, there are noticeable progressions almost weekly, unless you are with him a lot you might not notice them but they are there. He will be starting another round of PT soon so I am hoping that it will strengthen his legs and arms so he can hopefully be better balanced, I just don’t know if that will help. Although we try to take it one day at a time I sometimes wonder if the progression picks up at this point. After having this condition for 4-5 years and neuron continue to die off it just seems like it will get worse at a quicker pace. I wish I knew someone to talk to who has been through this, just to see their story and timeline, it might help me to prepare for what’s ahead.
