11/10/11
Bernie’s eyes are closing more and more, we have about 2 weeks before we go back to the doctor for more Botox ejections. Funny how his blink rate has slowed down but his eyes shut on their own all the time, one would almost think that if the blink rate declined that the eyes would stay open! He tires easily; even walking around the mall seems too much for him now. Stairs are difficult and getting off the couch is not easy either. I am starting to look into the power recliners; I think that is the next step.
It’s hard to try to guess what might be next, I wish someone who has been through this before would have a blog or posting outlining what they went through, even though “everybody” is different it could still be a guide. We are into our 6th year with this and the life expectancy for PSP is 7-10 years, and I would like to know if that is a reliable guide line. Not that I would do anything much differently except maybe try to travel more, while it not too hard to get around. We do live each day as it comes and try not to think about what tomorrow will bring, but I guess most people over fifty do that…you know the second phase of life! The first fifty we don’t think too much about, but after turning 50 we start to think it’s time to slow down the clock and try to enjoy life a little……
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